Newsletters

  Who do you know that can help us fund a cure for WM? Join the WMFC Fundraising Committee The WMFC is recruiting members for its Fundraising Committee.  We depend on donors to do our important work, and each year we raise funds to support WM research.  Recently, the WMFC created a volunteer Fundraising Committee to lead our fundraising efforts, and we hope you’ll consider joining us. The WMFC Fundraising Committee supports the planning, coordination, and implementation of WMFC fundraising to support strategic and program priorities.  The Committee plays an essential role in determining the WMFC’s fundraising strategy, supporting events and [...]

The WMFC Needs Your Help 90% of all Donations fund WM Research and Patient Support The WMFC is entirely a volunteer Foundation and is the only Canadian organization focused exclusively on WM, its patients, and their families.  We run only two donation campaigns per year; right now we are asking for your support for our Year End Appeal.  All donations that are received by December 31, 2021 will receive a CRA tax receipt. Our recent accomplishments and future plans include: WMFC continues to fund two Research Grants: a US $200,000 WM research grant to Dr Hunter at the [...]

September 2021: From the WMFC Editorial Board: What's up with CAR T in Canada? New items of interest on our Web site In-person support group meetings not recommended yet The US FDA catches up to Canada by approving Zanubrutinib Launch of Two New Support Groups Request for your WM Doctor's name Rob Murenbeeld Memorial Golf Tournament Volunteers Needed   From the WMFC Editorial Board: What's up with CAR T in Canada? CAR T treatment is in the news everywhere.  How does it relate to WM?  And are there any CAR T trials going on in Canada?  Click here to check out [...]

June 2021: Introducing the New Canadian WM Blog Join the IWMF Research Month: Wow! The new WMFC Board of Directors   Canadian WM Blog The Editorial Group of the WMFC is pleased to present the first in a series of Blog posts on topics of interest to Canadian WM patients.  Whether it is new treatment options, status of drug approvals, clinical trial results or how your research money is being spent, we will do the research and provide to you a clear and concise report on the topic. We start the series with a focus on an important Clinical Trial in [...]

On May 19, 2021 the WMFC held its Annual General Meeting.  At the end of the meeting Paul Kitchen announced that he would be stepping down as Chair of the Board after two years in this role.  This is what he wrote in the WMFC May Newsletter: “Tonight at the AGM I will be stepping down as Chair of the Board.  I have been Chair for more than two years and have very much enjoyed this role.  As you all know, living with WM takes its toll and I do not at this time have the energy to continue as Chair.  [...]

Research Month On behalf of the WMFC Board I would like to thank all those who have made a contribution to this year’s Research Month.  It has been a great month for the WMFC and you have enabled the Board to fulfil the commitments it has made to support leading research in both the United States and Canada. It is never too late for those who would like to send in a contribution towards the research work the WMFC is supporting. Paul’s Walk to Support Research Month May has been a long and very cool month in New Brunswick and by [...]

A reminder that tonight is the AGM at 7:00pm EST.  A zoom link is below.   Our AGM is not very exciting but all are welcome to view. WMFC AGM via Zoom Time: May 19, 2021 07:00 PM Eastern Time Join Zoom Meeting https://us02web.zoom.us/j/8573940250 Meeting ID: 857 394 0250 Thank you very much for all the support for both Research Month and the “Walk 10K a Day in May”.  The walk and those supporting it have raised over $20K.  Thank you.  I have been inspired by your enthusiasm and support. Tonight at the AGM I will be stepping down as Chair of the Board.  [...]

Each year the WMFC has only two fundraisers.  One is for Research Month and the other is an end of year general appeal.  May 2021 is this year’s Research Month.  We are hoping to raise sufficient funds to support the ground-breaking research that the WMFC is investing in. On our May is Research Month page, you can read about the research that the WMFC is currently funding. And this year, the chair of the WMFC, Paul Kitchen, has set himself a goal: he will walk 10 km per day, every day of the month of May, to raise money for WM [...]

National Zoom Meeting On Wednesday, April 7, at 7:00 pm EST, there will be a national WMFC Zoom meeting where we will discuss a number of topics that will be of interest to all Canadian WMers.  One of the topics that will be discussed is a new clinical trial in the US that one of our members is on.  Please join us.  Here is a link to the meeting: Join Zoom Meeting https://us02web.zoom.us/j/84048441505 Meeting ID: 840 4844 1505 Research Month May 2021 will be Research Month for the WMFC.  We are proud of the research we funded in the past.  We want [...]

Zanubrutinib Approved by Health Canada Today we received notification that Health Canada has accepted Zanubrutinib as a WM treatment.  Here is a link to the announcement from BeiGene:  https://ir.beigene.com/news-releases/news-release-details/health-canada-approves-brukinsar-zanubrutinib-treatment Zanubrutinib is another BTK inhibitor and has tested to have had fewer side effects.  This is good news for WM patients who will have one more option of treatment available to them. Lymphoma Canada Survey The next step for Zanubrutinib to be funded in Canada is for a submission to be made to pCODR and INESSS.  In January the WMFC sent you a link to a survey which many of you [...]