If you have questions on specific topics and you would like to speak with an experienced WM patient who may have had similar experiences and/or treatment questions, our LIFELINE volunteers may be able to help.

The WMFC is proud to have a volunteer-based telephone and e-mail LIFELINE intended to address specific WM questions from our members. The LIFELINE is staffed by WM patients and caregivers who are willing to share their experiences in specialized areas and help others to navigate their WM journey. These peer mentors are not doctors or medical professionals, and they do not give medical advice or treatment recommendations. However, LIFELINE volunteers have personal, and often extensive, experience in specified areas and they may be able to assist you in accessing better information or refer you to experts in specific areas.

If you would like to be a LIFELINE volunteer, please contact us.

NEWLY DIAGNOSED and WATCH & WAIT

BENDAMUSTINE (Treanda) and RITUXIMAB (Rituxan)

BING NEEL

  • Lucie Martineau at martineaulucie@gmail.com or (819) 327-5183/(514) 229-5179 (QC) *Inquiries in French and English welcome

CLINICAL TRIALS

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome

CP – RITUXIMAB (Rituxan)

CYBORD (Cyclophsophamide, Bortezomib (Velcade) and Dexamethasone)

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

DLBCL TRANSFORMATION

  • Lucie Martineau at martineaulucie@gmail.com or (819) 327-5138/(514) 341-555 (QC) *Inquiries in French and English welcome

FLUDARABINE (Fludara)

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

IBRUTINIB (Imbruvica)

IVIG

PERIPHERAL NEUROPATHY

RITUXIMAB (Rituxan) plus CYCLOPHOSPHAMIDE

SOLO RITUXIMAB (Rituxan)

PLASMARPHERESIS

  • Mark Seliskar at mseliskar@yahoo.com 514-773-8430 (QC) *Inquiries in French and English welcome

ALLOGENIC STEM CELL TRANSPLANT (i.e., stem cells from someone else)

AUTOLOGOUS STEM CELL TRANSPLANT (i.e., using your own stem cells)

YOUNG WM

  • Mark Seliskar at mseliskar@yahoo.com 514-773-8430 (QC) *Inquiries in French and English welcome

HELP WMFC

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