If you have questions on specific topics and you would like to speak with an experienced WM patient who may have had similar experiences and/or treatment questions, our LIFELINE volunteers may be able to help.

The WMFC is proud to have a volunteer-based telephone and e-mail LIFELINE intended to address specific WM questions from our members. The LIFELINE is staffed by WM patients and caregivers who are willing to share their experiences in specialized areas and help others to navigate their WM journey. These peer mentors are not doctors or medical professionals, and they do not give medical advice or treatment recommendations. However, LIFELINE volunteers have personal, and often extensive, experience in specified areas and they may be able to assist you in accessing better information or refer you to experts in specific areas.

If you would like to be a LIFELINE volunteer, please contact us.

The following are people you may feel free to contact if you have any questions about the situations or treatments you are facing.

NEWLY DIAGNOSED

BENDAMUSTINE and Rituxan

BING NEEL

CLINICAL TRIALS

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome

CP – RITUXAN

CYBORD (Cyclophsophamide, Bortezomib (Velcade) and Dexamethasone)

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

DLBCL TRANSFORMATION

FLUDARABINE

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

IMBRUVICA

IVIG

PERIPHERAL NEUROPATHY

PLASMAPHERESIS 

  • Open

RITUXAN/CYCLOPHOSPHAMIDE

RITUXAN/RITUXAN MAINTENANCE

ALLOGENIC STEM CELL TRANSPLANT (i.e., stem cells from someone else)

AUTOLOGOUS STEM CELL TRANSPLANT (i.e., using your own stem cells)

WAIT AND WATCH

YOUNG WM

  • Open

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