If you have questions on specific topics and you would like to speak with an experienced WM patient who may have had similar experiences and/or treatment questions, our LIFELINE volunteers may be able to help.
The WMFC is proud to have a volunteer-based telephone and e-mail LIFELINE intended to address specific WM questions from our members. The LIFELINE is staffed by WM patients and caregivers who are willing to share their experiences in specialized areas and help others to navigate their WM journey. These peer mentors are not doctors or medical professionals, and they do not give medical advice or treatment recommendations. However, LIFELINE volunteers have personal, and often extensive, experience in specified areas and they may be able to assist you in accessing better information or refer you to experts in specific areas.
If you would like to be a LIFELINE volunteer, please contact us.
NEWLY DIAGNOSED and WATCH & WAIT
- Dave Johnston at drjohnston@sympatico.ca or (416) 447-0367 (Willowdale ON)
- Paul Cadrin at paulcadrin@hotmail.com (438) 381-5048 (Montreal QC) *Inquiries in French and English welcome
- Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome
BENDAMUSTINE (Treanda) and RITUXIMAB (Rituxan)
- Charles Schafer at charlestschafer@gmail.com or (902) 861-3145 (Halifax NS) *Inquiries in French and English welcome
- Raffaela Mercurio at raffaela.mercurio@wmfc.com or (416) 566-3606 (Toronto ON)
BING NEEL
- Lucie Martineau at martineaulucie@gmail.com or (819) 327-5183/(514) 229-5179 (QC) *Inquiries in French and English welcome
CLINICAL TRIALS
- Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome
CP – RITUXIMAB (Rituxan)
- Lucie Martineau at martineaulucie@gmail.com or (819) 327-5138/(514) 229-5179 (QC) *Inquiries in French and English welcome
- Sari Martin at sarijmartin@gmail.com (403) 801-4719 (Victoria, BC; leave a message, please!)
CYBORD (Cyclophsophamide, Bortezomib (Velcade) and Dexamethasone)
- Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome
DLBCL TRANSFORMATION
- Lucie Martineau at martineaulucie@gmail.com or (819) 327-5138/(514) 341-555 (QC) *Inquiries in French and English welcome
FLUDARABINE (Fludara)
- Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome
IBRUTINIB (Imbruvica)
- A. Clancy at clancy@syncmail.ca or (416) 219-2121 (Toronto ON)
- Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome
IVIG
- Paul Kitchen at paul@paulkitchen.ca
PERIPHERAL NEUROPATHY
- Sari Martin at sarijmartin@gmail.com or (403) 801-4719 (Victoria, BC; leave a message, please!)
RITUXIMAB (Rituxan) plus CYCLOPHOSPHAMIDE
- Paul Cadrin at paulcadrin@hotmail.com 438-381-5048 (QC) *Inquiries in French and English welcome
SOLO RITUXIMAB (Rituxan)
- Gary Dvorkin at fgdvorkin@gmail.com (905) 607-4488 (Mississauga ON)
PLASMAPHERESIS
- Mark Seliskar at mseliskar@yahoo.com 514-773-8430 (QC) *Inquiries in French and English welcome
ALLOGENIC STEM CELL TRANSPLANT (i.e., stem cells from someone else)
- Joe Lewicki at macroglobulinemia@gmail.com
AUTOLOGOUS STEM CELL TRANSPLANT (i.e., using your own stem cells)
- Lucie Martineau at martineaulucie@gmail.com or (819) 327-5138/(514) 341-555 (QC) *Inquiries in French and English welcome
- Stu Boland at stu_boland@hotmail.com or (403) 281-0271 (Calgary AB)
YOUNG WM
- Mark Seliskar at mseliskar@yahoo.com 514-773-8430 (QC) *Inquiries in French and English welcome
