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Waldenstrom’s Macroglobulinemia Foundation of Canada (WMFC)
WMFC is the only Canadian Charitable organization dedicated solely to the Support, Education and Research for a Cure of WM.
Latest Canadian WM Information
Got something relevant to Canadian WMers? Provincial or national, we’d like to include it. Send us a note!
As we reported in our earlier post here, Canadian efforts in CAR-T therapy are progressing. Although it is not WM directly, here’s a report of one of about 20 Canadians to have undergone the procedure so far: https://www.ctvnews.ca/health/car-t-cell-therapy-canadian-patient-in-landmark-trial-shares-his-story-1.5656172.
The Leukemia and Lymphoma Society of Canada (LLSC) has organized a series of presentations from November 22-26. Topics include sleep, the emotional toll of cancer, sexuality, nutrition and well-being. “Unexpectedly pausing some of your life goals as you confront a blood cancer diagnosis may cause you a great deal of worry. When you’re in or out of treatment, or navigating a chronic blood cancer, taking care of your health and well-being are especially important.” Go to https://www.llscanada.org/events/living-well-blood-cancer and click on the individual title to register for a particular talk.
Dr. Sophie Lebel, an Ottawa-based clinician and researcher presented an excellent webinar, organized by Lymphoma Canada, entitled Fear of Disease Recurrence and Management Strategies. She reported that 50% of cancer patients and their family caregivers reported fear of recurrence as a significant issue. She and her colleagues have developed a programme called FORT — Fear of Recurrence Therapy — to help people develop coping strategies. Her 45-minute presentation and Q&A can be found here: https://www.lymphoma.ca/fear-of-recurrence-information-for-lymphoma-patients-and-management-techniques/
See our post (from Lymphoma Canada) providing links to statements from all Canadian provinces and territories on their recommendations for Covid vaccines for Lymphoma patients. Go right to the source for your province / territory!
NCT04624906, the only Canadian trial specifically for WM patients, a.k.a. the BRAWM trial led by Dr. Berinstein, is now accepting patients not just at Toronto’s Sunnybrook Health Sciences Centre, but also at the Vancouver General Hospital, the QEII Health Sciences Centre in Halifax, and The Ottawa Hospital.
