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“Grand Rounds” with Dr. Steven Treon

2022-06-16T11:27:42-04:00

A project that has been a long time in the making came to fruition earlier this year.  The goal of the WMFC was to have a series of video conferences led by key WM researchers, and to specifically invite Canadian Medical Professionals to learn more about our disease from those who know it best. This required a lot of things to come together: Availability of at least one key speaker.  With the assistance of the Dana-Farber Cancer Institute, and in particular Christopher Patterson (the Administrative Director of the Bing Center for WM), we were able to get our program onto the [...]

“Grand Rounds” with Dr. Steven Treon2022-06-16T11:27:42-04:00

“What is my NEXT treatment?” with Dr. Carolyn Owen

2022-05-28T10:12:40-04:00

Our National Zoom meeting from May 24th, 2022, should be on every WMer's "must watch" list.  Dr. Owen presented the Canadian treatment situation for WM, concisely summarizing what is available, the pros and cons of various options, and putting her current clinical trial with Nemtabrutinib into that context. The video is available here, on our YouTube channel. Dr. Owen is Associate Professor in the Division of Hematology & Hematological Malignancies, University of Calgary, and Hematologist at the Tom Baker Cancer Centre.  She is also the Local Principal Investigator at the Tom Baker Cancer Centre for the clinical trial of Nemtabrutinib, which [...]

“What is my NEXT treatment?” with Dr. Carolyn Owen2022-05-28T10:12:40-04:00

WMFC has a YouTube Channel!

2022-03-23T16:58:09-04:00

We have a YouTube channel!  https://www.youtube.com/channel/UCYDcXKrk4Nedjj_RIz1B_NQ will take you there. This channel has collected all of the WMFC videos we’ve been able to find, into one place.  This includes the collection of videos from our 2019 Ed Forum, and many recordings of Zoom meetings, both older and more recent, that featured a guest speaker. Future WMFC videos (those recordings of Zoom meetings that feature a guest speaker, and our next Ed Forum) will be put there, too. One thing to be aware of: if you are looking at some of our older posts on this website, and you click on a [...]

WMFC has a YouTube Channel!2022-03-23T16:58:09-04:00

BRAWM Trial Update from Dr. Neil Berinstein

2022-03-13T15:38:52-04:00

On Feb. 9th 2022, Dr. Neil Berinstein of the Sunnybrook Cancer Research Institute provided us with an update on the BRAWM trial.  That trial combines the standard-of-care Bendamustine + Rituximab, but adds in a BTK inhibitor, Acalabrutinib. He also gave us an view of how Covid impacts WM patients. And there was time for Q&A on both topics. View the video here, on the WMFC YouTube channel.

BRAWM Trial Update from Dr. Neil Berinstein2022-03-13T15:38:52-04:00

National Zoom: The Role of Nutrition and Hydration

2021-10-15T09:23:23-04:00

Megan Morrison, Registered Dietitian at the Princess Margaret Cancer Centre Malignant Hematology Program in Toronto spent time with us to talk about the role of nutrition and hydration during our journey with WM. Not everyone was able to attend the presentation live, so we recorded it.  You can view the recording here: https://iwmf-wm.zoom.us/rec/share/YSZrtFh49bhnaGCOTpp58MXO19X-dHwbcjoVVpFe8D8w_krB1GClvS0uUXzt0ku2.0M9sTAXUPNvVsyos. You'll need a password to view the video.  It is "L$?i+WY7" -- just the characters inside the double quotes.   If you are copying and pasting this string, make sure you do not include the double quotes.

National Zoom: The Role of Nutrition and Hydration2021-10-15T09:23:23-04:00

Dr. Gertz Covers a Wide Range of WM Topics

2021-09-21T11:21:03-04:00

The IWMF brought Support Group Leaders from the US and Canada together to hear Dr. Morie Gertz of the Mayo Clinic, Rochester, MN. Dr. Gertz’s unique perspective and succinct, perceptive, precise messaging was absolutely priceless. Perhaps most useful to our newer members would be the first 20 minutes, during which he discussed the importance of understanding when to treat WM, and why "watch and wait" was such an important aspect of a treatment plan for WM. This was followed by an engaging Q&A covered everything from understanding COVID antibodies to the importance of consultations at Centers of Excellence to encouraging [...]

Dr. Gertz Covers a Wide Range of WM Topics2021-09-21T11:21:03-04:00

Webcast: Canadian Clinical Trials and Access, for Lymphoma Patients

2021-07-03T13:25:57-04:00

What would you like to know about participating in a Clinical Trial in Canada?  Dr. Neil Berinstein, known to many of our readers, walked through many, many of the questions one might have.  Think of it as "Clinical Trials 101". This was presented as a webcast through Lymphoma Canada on June 29, 2021. Dr. Berinstein himself is running a WM-specific clinical trial right now, so this is definitely appropriate to our WM community. For the description of the event from Lymphoma Canada, click here. And to view the webcast, you will have to click here, and supply your name and email [...]

Webcast: Canadian Clinical Trials and Access, for Lymphoma Patients2021-07-03T13:25:57-04:00

National Zoom: The Management of WM in Canada

2021-06-16T17:11:04-04:00

We were privileged to have Dr. Christine Chen, from Toronto's Princess Margaret Cancer Centre, give us an overview of how WM is managed in Canada.  She covered both BR (the standard of care pretty much across Canada), and discussed how newer treatments are being picked up. And there was time for a question-and-answer session, as well. You will need a passcode to view the recording: 5Rm64fh* -- if you are copy-and-pasting it, make sure you pick up the asterisk (*) at the end, as it is part of the passcode.  And make sure you do not inadvertently pick up a [...]

National Zoom: The Management of WM in Canada2021-06-16T17:11:04-04:00

National Zoom: New Canada-Based WM Treatment Trial

2021-03-19T12:19:39-04:00

At our National Zoom meeting on February 3, 2021, our guest was Dr. Neil Berinstein of the Toronto Sunnybrook Hospital and Odette Cancer Research Program.  For the first time in several years, we were able to hear about a clinical trial being started in Canada.  Dr. Berinstein, the principal investigator, explained the rationale for the choice of treatments being combined in this trial. The trial involves the Canadian "standard of care" treatment (Bendamustine plus Rituximab), combined with a one-year, time-limited use of Acalabrutinib.  The trial is described more formally at this Clinical Trials.gov site. To see the video of our [...]

National Zoom: New Canada-Based WM Treatment Trial2021-03-19T12:19:39-04:00

Dr. Ansell on Key Knowledge Gaps for WM Research, and Covid Vaccines

2021-01-27T17:35:53-05:00

The IWMF held a North America Support Group Leaders meeting on January 15, 2021 with Dr. Ansell of the Mayo Clinic (Rochester, MN) as the guest speaker. We’ve posted here a few approximate timestamps for topics in the video, in case you are only interested in a particular item.  But they are all worthwhile – he is an excellent speaker and explainer!  The topics covered included: (From 4:40 to 24:30)  As chair of the IWMF Scientific Advisory Committee he discusses how the committee operates.  But this is not just a dry talk about committee structures – he spends the majority [...]

Dr. Ansell on Key Knowledge Gaps for WM Research, and Covid Vaccines2021-01-27T17:35:53-05:00
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