What would you like to know about participating in a Clinical Trial in Canada? Dr. Neil Berinstein, known to many of our readers, walked through many, many of the questions one might have. Think of it as "Clinical Trials 101". This was presented as a webcast through Lymphoma Canada on June 29, 2021. Dr. Berinstein himself is running a WM-specific clinical trial right now, so this is definitely appropriate to our WM community. For the description of the event from Lymphoma Canada, click here. And to view the webcast, you will have to click here, and supply your name and email [...]
We were privileged to have Dr. Christine Chen, from Toronto's Princess Margaret Cancer Centre, give us an overview of how WM is managed in Canada. She covered both BR (the standard of care pretty much across Canada), and discussed how newer treatments are being picked up. And there was time for a question-and-answer session, as well. You will need a passcode to view the recording: 5Rm64fh* -- if you are copy-and-pasting it, make sure you pick up the asterisk (*) at the end, as it is part of the passcode. And make sure you do not inadvertently pick up a [...]
At our National Zoom meeting on February 3, 2021, our guest was Dr. Neil Berinstein of the Toronto Sunnybrook Hospital and Odette Cancer Research Program. For the first time in several years, we were able to hear about a clinical trial being started in Canada. Dr. Berinstein, the principal investigator, explained the rationale for the choice of treatments being combined in this trial. The trial involves the Canadian "standard of care" treatment (Bendamustine plus Rituximab), combined with a one-year, time-limited use of Acalabrutinib. The trial is described more formally at this Clinical Trials.gov site. To see the video of our [...]
The IWMF held a North America Support Group Leaders meeting on January 15, 2021 with Dr. Ansell of the Mayo Clinic (Rochester, MN) as the guest speaker. We’ve posted here a few approximate timestamps for topics in the video, in case you are only interested in a particular item. But they are all worthwhile – he is an excellent speaker and explainer! The topics covered included: (From 4:40 to 24:30) As chair of the IWMF Scientific Advisory Committee he discusses how the committee operates. But this is not just a dry talk about committee structures – he spends the majority [...]
The organization CancerCare put together a workshop entitled “For Caregivers: Coping with a Loved One's Waldenstrom’s Macroglobulinemia”. It brought together: Carolyn Messner (director of Education and Training at CancerCare), Carl Harrington (chairman of the IWMF), Dr. Jeffrey V. Matous (from the Colorado Blood Cancer Institute), and Georgie Cusack (Director of Education and Patient Safety, National Institutes of Health). You can listen to the workshop at the following link. For Caregivers: Coping with a Loved One's WM
The organization CancerCare put together a workshop entitled "The Latest News in the Treatment of Waldenstrom’s Macroglobulinemia". It brought together: Carolyn Messner (director of Education and Training at CancerCare), Carl Harrington (chairman of the IWMF), Dr. Christian Buske (a noted WM researcher from Germany), and Dr. Steven Treon (from the Bing Center for WM at the Dana Farber Cancer Institute). You can listen to the workshop at the following link. Dr. Treon and Dr. Buske, "The Latest News in WM"
The Toronto support group invited Dr. Treon to join them. He led them through a discussion of how the research on BTK inhibitors is progressing towards new drug offerings. View the recorded Zoom session at the link below. Dr. Treon presents Next Gen BTK Inhibitors
In mid-2020, Dr. Zachary Hunter spoke at an Atlantic Support Group Zoom Meeting. Click on the link below to view his presentation entitled “What is New in Waldenstrom’s Macroglobulinemia Research?”. His talk is followed by a question and answer session. Dr. Hunter's Presentation and Q&A
Dr. Jorge Castillo participated in a Zoom meeting with the Philadelphia support group. They recorded the session and kindly shared it with all of us. The link and password for viewing are available at the IWMF page, below. Dr. Castillo "Ask the Doctor"
In October, 2020, we had a national WMFC meeting (via Zoom, of course). Our guest was Dr. Steve Treon of DFCI. The topic of his presentation was "Genomic and Treatment Advances in WM". The recording of the meeting is available, below. Genomic and Treatment Advances in WM