At our National Zoom meeting on February 3, 2021, our guest was Dr. Neil Berinstein of the Toronto Sunnybrook Hospital and Odette Cancer Research Program. For the first time in several years, we were able to hear about a clinical trial being started in Canada. Dr. Berinstein, the principal investigator, explained the rationale for the choice of treatments being combined in this trial. The trial involves the Canadian "standard of care" treatment (Bendamustine plus Rituximab), combined with a one-year, time-limited use of Acalabrutinib. The trial is described more formally at this Clinical Trials.gov site. To see the video of our [...]
The IWMF held a North America Support Group Leaders meeting on January 15, 2021 with Dr. Ansell of the Mayo Clinic (Rochester, MN) as the guest speaker. We’ve posted here a few approximate timestamps for topics in the video, in case you are only interested in a particular item. But they are all worthwhile – he is an excellent speaker and explainer! The topics covered included: (From 4:40 to 24:30) As chair of the IWMF Scientific Advisory Committee he discusses how the committee operates. But this is not just a dry talk about committee structures – he spends the majority [...]
The organization CancerCare put together a workshop entitled “For Caregivers: Coping with a Loved One's Waldenstrom’s Macroglobulinemia”. It brought together: Carolyn Messner (director of Education and Training at CancerCare), Carl Harrington (chairman of the IWMF), Dr. Jeffrey V. Matous (from the Colorado Blood Cancer Institute), and Georgie Cusack (Director of Education and Patient Safety, National Institutes of Health). You can listen to the workshop at the following link. For Caregivers: Coping with a Loved One's WM
The organization CancerCare put together a workshop entitled "The Latest News in the Treatment of Waldenstrom’s Macroglobulinemia". It brought together: Carolyn Messner (director of Education and Training at CancerCare), Carl Harrington (chairman of the IWMF), Dr. Christian Buske (a noted WM researcher from Germany), and Dr. Steven Treon (from the Bing Center for WM at the Dana Farber Cancer Institute). You can listen to the workshop at the following link. Dr. Treon and Dr. Buske, "The Latest News in WM"
The Toronto support group invited Dr. Treon to join them. He led them through a discussion of how the research on BTK inhibitors is progressing towards new drug offerings. View the recorded Zoom session at the link below. Dr. Treon presents Next Gen BTK Inhibitors
In mid-2020, Dr. Zachary Hunter spoke at an Atlantic Support Group Zoom Meeting. Click on the link below to view his presentation entitled “What is New in Waldenstrom’s Macroglobulinemia Research?”. His talk is followed by a question and answer session. Dr. Hunter's Presentation and Q&A
Dr. Jorge Castillo participated in a Zoom meeting with the Philadelphia support group. They recorded the session and kindly shared it with all of us. The link and password for viewing are available at the IWMF page, below. Dr. Castillo "Ask the Doctor"
In October, 2020, we had a national WMFC meeting (via Zoom, of course). Our guest was Dr. Steve Treon of DFCI. The topic of his presentation was "Genomic and Treatment Advances in WM". The recording of the meeting is available, below. Genomic and Treatment Advances in WM
In an interview with OncLive in September, 2020, Dr. Treon from DFCI discussed the various BTK inhibitors that are now available or in trials. BTK Inhibitors transform WM management Along the same lines, a very valuable discussion was moderated by Dr. Treon, including experts from Europe and Australia. This was recorded for the Oncology Learning Network in 2019. It is available as both a video and as a transcript. Video: BTK Inhibitors for the treatment of WM Transcript: BTK Inhibitors for the treatment of WM
This animated video from Doc Mike Evans explains the effects of cancer-related fatigue. Dr. Evans explains that fatigue is the most common medical issue for cancer patients, ranking higher than pain or depression. He shares that cancer fatigue is very different than the fatigue most people face when they’re overtired or stressed, and that it has a profound effect on a person’s physical and mental health. Cancer-related fatigue can be brought on by a combination of things: the cancer itself, the side effects of cancer treatments like chemotherapy and radiotherapy, and depression or anxiety associated with having a chronic illness. [...]