Dr. Berinstein: Decisions around First Line Therapy


On Mar. 27/2024, Dr. Neil Berinstein of the Odette Cancer Centre at the Sunnybrook Hospital in Toronto put us in the driver's (ok, doctor's) seat!  After giving us the basics of WM diagnosis and treatment options, we were offered four case studies, and had to decide on their diagnosis and treatment.  Not as easy as it sounds!!  Once again, WM proves that "when you've met one WMer ... you've met one WMer" -- we are all so different from one another. Dr. Berinstein is also the Principal Investigator for the all-Canadian BRAWM trial, for previously untreated Canadian WM patients who now [...]

Dr. Berinstein: Decisions around First Line Therapy2024-03-28T14:17:00-04:00

Education: The bigger picture — Non-Hodgkin Lymphomas


For those of you interested in a slightly bigger picture, this video, from The Leukemia & Lymphoma Society of Canada (LLSC), may be of interest.  At a high level, it presents an overview of Non-Hodgkin Lymphomas, including where they arise from, the spectrum of lymphomas from indolent to aggressive, and very good (but brief!) introductions to the various treatment modalities.   Of particular interest was a discussion of how sub-classification of lymphomas is leading to better treatments -- exactly what was done in the WMFC co-sponsored research from Dr. Hunter.  An overview of Minimal Residual Disease is useful as background for those [...]

Education: The bigger picture — Non-Hodgkin Lymphomas2024-01-26T13:24:38-05:00

Bing-Neel Syndrome Update with Dr. Shayna Sarosiek, April 2023


Dr. Shayna Sarosiek of Dana-Farber Cancer Institute provided an update on Bing-Neel.  This presentation was given to two IWMF support group meetings in April 2023.  You can view it here. From IWMF Bing-Neel Co-Leader & Lifeline Volunteer, Julie Davidson: "The Bing-Neel Support Group just had our Spring meeting. We featured a wonderfully informative video by Dr. Shayna Sarosiek, senior physician at the Dana-Farber Cancer Institute’s Bing Center for Waldenstrom’s Macroglobulinemia. To be included on the group mailing list, or just to talk to someone about Bing-Neel Syndrome, contact Julie Davidson, IWMF Lifeline Volunteer for Bing-Neel at

Bing-Neel Syndrome Update with Dr. Shayna Sarosiek, April 20232023-04-16T18:01:56-04:00

Navigating Second Opinions


On March 20th, 2023, we had an extremely thorough walk-through of questions and concerns one should think about when considering a second opinion.  Catherine Caule, a patient advocate and community volunteer in Ottawa, presented her well-researched guidelines for navigating second opinions.  Can I get one; when would I get one; and how and where would I get one. A "must view" for anyone considering a second opinion! You can see it on the WMFC YouTube channel at

Navigating Second Opinions2023-03-21T09:11:48-04:00

Dr. MacDonald: From the origins of WM to treatments beyond BTKi


Dr. David MacDonald of The Ottawa Hospital provided us with an extremely informative presentation at our National Zoom meeting on Oct. 26, 2022.  One of the best presentations, done in layman's terms, covering a set of topics: How does WM originate in the body, and how does it relate to other lymphomas How have drugs been approved for WM in Canada How is WM treated in Canada ... including brief updates on clinical trials that Dr. MacDonald is involved in (and which we have covered in blog posts in the past): BRAWM nemtabrutinib Highly recommended viewing for anyone wanting a refresher [...]

Dr. MacDonald: From the origins of WM to treatments beyond BTKi2022-11-03T15:40:07-04:00

“Grand Rounds” with Dr. Steven Treon


A project that has been a long time in the making came to fruition earlier this year.  The goal of the WMFC was to have a series of video conferences led by key WM researchers, and to specifically invite Canadian Medical Professionals to learn more about our disease from those who know it best. This required a lot of things to come together: Availability of at least one key speaker.  With the assistance of the Dana-Farber Cancer Institute, and in particular Christopher Patterson (the Administrative Director of the Bing Center for WM), we were able to get our program onto the [...]

“Grand Rounds” with Dr. Steven Treon2022-06-16T11:27:42-04:00

“What is my NEXT treatment?” with Dr. Carolyn Owen


Our National Zoom meeting from May 24th, 2022, should be on every WMer's "must watch" list.  Dr. Owen presented the Canadian treatment situation for WM, concisely summarizing what is available, the pros and cons of various options, and putting her current clinical trial with Nemtabrutinib into that context. The video is available here, on our YouTube channel. Dr. Owen is Associate Professor in the Division of Hematology & Hematological Malignancies, University of Calgary, and Hematologist at the Tom Baker Cancer Centre.  She is also the Local Principal Investigator at the Tom Baker Cancer Centre for the clinical trial of Nemtabrutinib, which [...]

“What is my NEXT treatment?” with Dr. Carolyn Owen2022-05-28T10:12:40-04:00

WMFC has a YouTube Channel!


We have a YouTube channel! will take you there. This channel has collected all of the WMFC videos we’ve been able to find, into one place.  This includes the collection of videos from our 2019 Ed Forum, and many recordings of Zoom meetings, both older and more recent, that featured a guest speaker. Future WMFC videos (those recordings of Zoom meetings that feature a guest speaker, and our next Ed Forum) will be put there, too. One thing to be aware of: if you are looking at some of our older posts on this website, and you click on a [...]

WMFC has a YouTube Channel!2022-03-23T16:58:09-04:00

BRAWM Trial Update from Dr. Neil Berinstein


On Feb. 9th 2022, Dr. Neil Berinstein of the Sunnybrook Cancer Research Institute provided us with an update on the BRAWM trial.  That trial combines the standard-of-care Bendamustine + Rituximab, but adds in a BTK inhibitor, Acalabrutinib. He also gave us an view of how Covid impacts WM patients. And there was time for Q&A on both topics. View the video here, on the WMFC YouTube channel.

BRAWM Trial Update from Dr. Neil Berinstein2022-03-13T15:38:52-04:00

National Zoom: The Role of Nutrition and Hydration


Megan Morrison, Registered Dietitian at the Princess Margaret Cancer Centre Malignant Hematology Program in Toronto spent time with us to talk about the role of nutrition and hydration during our journey with WM. Not everyone was able to attend the presentation live, so we recorded it.  You can view the recording here: You'll need a password to view the video.  It is "L$?i+WY7" -- just the characters inside the double quotes.   If you are copying and pasting this string, make sure you do not include the double quotes.

National Zoom: The Role of Nutrition and Hydration2021-10-15T09:23:23-04:00
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