Becoming knowledgeable about WM, treatment options and coping mechanisms are key for your wellbeing as a patient with a rare cancer.
The WMFC holds an Educational Forum (Ed Forum) in major cities across Canada to help patients and caregivers learn about this disease from well renowned WM researchers, clinicians and doctors. Presentations include symptoms and complications of the disease, current treatment options, other patients sharing how they cope with the disease, new therapies and recent research findings that may someday lead to a cure.
The 2025 WMFC Virtual Educational Forum was held on November 14th and 15th, 2025.
The following content was recorded. Professionally translated French subtitles have been applied to them.
Unfortunately, due to technical issues, recordings of the presentations given in French by Dr. Rayan Kaedbey (Hôpital général juif, Montréal) and Dr. Jean-Sébastien Claveau (Hôpital Maisonneuve-Rosemont, Montréal) will not be available. Our apologies for this.
| Speaker(s) | Title of Presentation | Slides |
|---|---|---|
| Dr. Christine Chen (Princess Margaret Cancer Centre, Toronto, ON) | Diagnosis and Testing in WM | |
| Dr. Carolyn Owen (U. Calgary, Calgary, AB) | WM Therapy in Canada | |
| Dr. Christopher Venner (BC Cancer, Vancouver, BC) | The Weird Stuff | |
| Dr. Patrizia Mondello (Mayo Clinic, Rochester, Minn.) | Research into the Foundations of WM | |
| Dr. Neil Berinstein (Sunnybrook Hospital, Toronto, ON) | Patient Insights: Participating in a Clinical Trial | |
| Dr. Shirley D’Sa (University College London (UK) Hospitals ) | Living Well with WM | |
| Dr. Steve Treon (Dana-Farber Cancer Institute, Boston, MA) | Progress Towards a Cure | |
| Dr. Steve Treon, Dr. Neil Berinstein, Dr. David MacDonald (The Ottawa Hospital, Ottawa, ON) | Ask the Doctors |
After a pandemic-induced hiatus the WMFC Educational Forum was back, as a virtual event held on November 3rd and 4th 2023.
The following content was recorded. Subtitles professionally translated to French have been applied to some of these recordings.
| Speaker(s) | Title of Presentation | Recording | Slides |
|---|---|---|---|
| Dr. Robert Puckrin (Tom Baker Centre, Calgary, Alberta) | Introduction to Waldenstrom’s Macroglobulinemia: Diagnosis, Testing, and Understanding Your Results | Recording | Slides |
| Dr. David MacDonald (The Ottawa Hospital, Ottawa, Ontario) | Current and Future Treatment Options | Recording | Slides |
| Chris Robinson (Toronto, ON) Paul Cadrin (Montréal, QC) Mark Seliskar (Montréal, QC) Dean Price (Prince George, BC) |
Patient Panel (“If you’ve seen one WM patient…you’ve seen one WM patient”) | Recording | Chris |
| Christina Sit (Leukemia and Lymphoma Society of Canada) Hailey Hill (Atlantic Canada Oncology Drug Access Navigators Association) |
Your Cancer Treatments: Governments, Funding, and Access | Recording | Christina Hailey |
| Dr. Neil Berinstein (Sunnybrook Hospital and U. of Toronto, Toronto, Ontario) | Complications in WM | Recording | Slides |
| Dr. Neil Berinstein (Sunnybrook) Dr. Prashant Kapoor (Mayo Clinic, Rochester, MN) Dr. Guy Sherwood (Winnipeg, MB) |
Ask the Doctor | Recording |
Presentations from past Education Forums can be found here.
2019 WMFC Educational Forum (Toronto April 13, 2019)
2018 WMFC Educational Forum. (Halifax October 27, 2018)
IWMF Education Forums
The IWMF annually runs an Education Forum, in different parts of the US. Recently, many have been accessible virtually. More information on IWMF Ed Forums is available here.
