To Anyone who lands here:

This is a TEST page.

That means what you see here may not work.  It may not work as you expect.  Your mileage may vary!!!

Basically, keep your mouse off it unless you’ve been specifically invited — and even then, well, I may have just changed things.

And you know who “I” is.  Get in touch.

  • xxx yyy-zzzz

If you have questions on specific topics and you would like to speak with an experienced WM patient who may have had similar experiences and/or treatment questions, our LIFELINE volunteers may be able to help.

The WMFC is proud to have a volunteer-based telephone and e-mail LIFELINE intended to address specific WM questions from our members. The LIFELINE is staffed by WM patients and caregivers who are willing to share their experiences in specialized areas and help others to navigate their WM journey. These peer mentors are not doctors or medical professionals, and they do not give medical advice or treatment recommendations. However, LIFELINE volunteers have personal, and often extensive, experience in specified areas and they may be able to assist you in accessing better information or refer you to experts in specific areas.

If you would like to be a LIFELINE volunteer, please contact us.

SYMPTOMS and CONDITIONS related to WM

BING NEEL

DLBCL TRANSFORMATION

PERIPHERAL NEUROPATHY

YOUNG WM

  • Mark Seliskar at mseliskar@yahoo.com 514-773-8430 (QC) *Inquiries in French and English welcome

TREATMENTS FOR WM

NEWLY DIAGNOSED; WATCH & WAIT

BENDAMUSTINE (Treanda) plus RITUXIMAB (Rituxan)

CLINICAL TRIALS

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome

CYCLOPHOSPHAMIDE plus RITUXIMAB (Rituxan)

CYBORD (Cyclophsophamide, Bortezomib (Velcade) plus Dexamethasone)

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

FLUDARABINE (Fludara)

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

IBRUTINIB (Imbruvica)

  • A. Clancy at clancy@wmfc.com or (416) 219-2121 (Toronto ON)
  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

IVIG

RITUXIMAB (Rituxan) plus CYCLOPHOSPHAMIDE

SOLO RITUXIMAB (Rituxan)

PLASMARPHERESIS

  • Mark Seliskar at mseliskar@yahoo.com 514-773-8430 (QC) *Inquiries in French and English welcome

ALLOGENIC STEM CELL TRANSPLANT (i.e., stem cells from someone else)

AUTOLOGOUS STEM CELL TRANSPLANT (i.e., using your own stem cells)

Deleted stuff:

BING NEEL

DLBCL TRANSFORMATION

PERIPHERAL NEUROPATHY

YOUNG WM

  • Mark Seliskar at mseliskar@yahoo.com 514-773-8430 (QC) *Inquiries in French and English welcome

NEWLY DIAGNOSED; WATCH & WAIT

IVIG

PLASMARPHERESIS

  • Mark Seliskar at mseliskar@yahoo.com 514-773-8430 (QC) *Inquiries in French and English welcome
BENDAMUSTINE (Treanda) plus RITUXIMAB (Rituxan)

CLINICAL TRIALS

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898 (Halifax NS) *Inquiries in French and English welcome

CYCLOPHOSPHAMIDE plus RITUXIMAB (Rituxan)

CYBORD (Cyclophsophamide, Bortezomib (Velcade) plus Dexamethasone)

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

FLUDARABINE (Fludara)

  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

IBRUTINIB (Imbruvica)

  • A. Clancy at clancy@wmfc.com or (416) 219-2121 (Toronto ON)
  • Ron Ternoway at rternoway@gmail.com or (902) 997-1898  (Halifax NS) *Inquiries in French and English welcome

RITUXIMAB (Rituxan) plus CYCLOPHOSPHAMIDE

SOLO RITUXIMAB (Rituxan)

ALLOGENIC STEM CELL TRANSPLANT (i.e., stem cells from someone else)

AUTOLOGOUS STEM CELL TRANSPLANT (i.e., using your own stem cells)

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