{"id":5895,"date":"2023-05-31T20:54:17","date_gmt":"2023-06-01T00:54:17","guid":{"rendered":"https:\/\/www.wmfc.ca\/?p=5895"},"modified":"2023-05-31T20:54:17","modified_gmt":"2023-06-01T00:54:17","slug":"lettre-dinformation-de-mai-donnez-vos-donnees","status":"publish","type":"post","link":"https:\/\/www.wmfc.ca\/fr\/2023\/05\/31\/may-newsletter-donate-your-data\/","title":{"rendered":"Bulletin de mai - Faites don de vos donn\u00e9es"},"content":{"rendered":"<h2><strong>Vous pouvez aussi faire don de vos donn\u00e9es m\u00e9dicales<\/strong><\/h2>\n<p>La nature de la recherche est en train de changer avec l'av\u00e8nement de l'Intelligence Artificielle (IA), qui peut chercher et trouver des \"patterns\" dans d'\u00e9normes bases de donn\u00e9es.  Les r\u00e9sultats de vos analyses de sang peuvent enrichir ces bases de donn\u00e9es que l'IA parcourt \u00e0 la recherche d'indices pouvant mener vers de nouvelles th\u00e9rapies.<\/p>\n<p>Il existe un projet de base de donn\u00e9es australien appel\u00e9 Whimsical li\u00e9 \u00e0 \"CART\", le Centre d'Analyse des Maladies Rares.  Partager les r\u00e9sultats de vos tests avec l'\u00e9tude Whimsical est une autre fa\u00e7on de soutenir la recherche sur la MW!<\/p>\n<p><span style=\"text-decoration: underline;\">Faire don de ses donn\u00e9es<\/span><\/p>\n<p>Inscrivez-vous ici pour donner vos donn\u00e9es \u00e0 CARTwheel -\u00a0<a href=\"https:\/\/cart-wheel.biogrid.org.au\/gui\/Patient\/Register.aspx\" target=\"_blank\" rel=\"noopener\">https:\/\/cart-wheel.biogrid.org.au\/gui\/Patient\/Register.aspx<\/a><\/p>\n<p>&nbsp;<\/p>\n<p>La longue histoire de Whimsical - l'\u00e9tude officielle -\u00a0 <a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajh.26173\" target=\"_blank\" rel=\"noopener\">https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajh.26173<\/a><\/p>\n<p>La petite histoire de Whimsical - un article pour les non-experts  -\u00a0<a href=\"https:\/\/www.cart-wheel.org\/news\/whimsical-research\" target=\"_blank\" rel=\"noopener\">https:\/\/www.cart-wheel.org\/news\/6\/whimsical-research<\/a><\/p>\n<p>&nbsp;<\/p>\n<p><a href=\"\/fr\/2023\/05\/31\/mai-2023-contenus-de-la-lettre-dinformation\/\">Retour au bulletin<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>You can donate your data too The nature of research is changing with the advent of AIs that can look for patterns in huge databases.\u00a0 Your blood test results can enrich this landscape of data that AIs hunt through looking for clues. There\u2019s an Australian database project called Whimsical linked to CART, the Center for Analysis of Rare Diseases.\u00a0 Sharing your test results with the Whimsical study is another way to support WM research. Donating your data Sign up here to donate your data at CARTwheel &#8211;\u00a0https:\/\/cart-wheel.biogrid.org.au\/gui\/Patient\/Register.aspx &nbsp; The long Whimsical story \u2013 the official study &#8211;\u00a0 https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/ajh.26173 The short Whimsical <a href=\"https:\/\/www.wmfc.ca\/fr\/2023\/05\/31\/may-newsletter-donate-your-data\/\"> [&#8230;]<\/a><\/p>\n","protected":false},"author":4,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_price":"","_stock":"","_tribe_ticket_header":"","_tribe_default_ticket_provider":"","_ticket_start_date":"","_ticket_end_date":"","_tribe_ticket_show_description":"","_tribe_ticket_show_not_going":false,"_tribe_ticket_use_global_stock":"","_tribe_ticket_global_stock_level":"","_global_stock_mode":"","_global_stock_cap":"","_tribe_rsvp_for_event":"","_tribe_ticket_going_count":"","_tribe_ticket_not_going_count":"","_tribe_tickets_list":"[]","_tribe_ticket_has_attendee_info_fields":false,"footnotes":""},"categories":[35],"tags":[],"class_list":["post-5895","post","type-post","status-publish","format-standard","hentry","category-newsletter-segment"],"_links":{"self":[{"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/posts\/5895","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/comments?post=5895"}],"version-history":[{"count":8,"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/posts\/5895\/revisions"}],"predecessor-version":[{"id":6407,"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/posts\/5895\/revisions\/6407"}],"wp:attachment":[{"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/media?parent=5895"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/categories?post=5895"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.wmfc.ca\/fr\/wp-json\/wp\/v2\/tags?post=5895"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}